Category Archives: Privacy Abbreviated

Consumer Privacy in Telehealth: An Interview with the ATA

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In this episode of Priv, host Dona Fraser is joined by American Telehealth Association (ATA) Senior Vice President of Public Policy, Kyle Zebley to check up on consumer health data privacy in the telehealth industry.

From HIPAA to the pandemic to Dobbs to a hodge-podge of new state-level privacy laws, Dona and Kyle discuss the ways companies are navigating this complex terrain, how the world of telehealth has drastically changed, the role of AI in today’s telehealth privacy picture, and what this picture may look like in the future. 

Some key takeaways from this episode are:

  • (6:41) The COVID-19 pandemic has accelerated the adoption of telehealth, allowing patients to access care remotely and overcoming barriers such as geographic limitations and workforce shortages.
  • (10:33) Data privacy is a significant concern in telehealth, and organizations like the ATA are working to develop principles and advocate for consistent policies to protect patient information.
  • (17:25) The regulatory landscape for telehealth is complex, with federal and state laws impacting the delivery of care and the collection and use of health data. Consistency and clarity in regulations are essential to ensure compliance and enable innovation.
  • (25:36) AI has the potential to revolutionize healthcare by improving efficiency, personalizing care, and addressing workforce shortages. However, it is crucial to have accountability, oversight, and guardrails in place to mitigate bias and protect patient rights.
  • (33:03) The future of telehealth and data privacy will depend on ongoing federal conversations, legislative actions, and regulatory decisions. Stakeholders must work together to ensure that telehealth continues to expand and provide accessible and high-quality care.

Another key item to note is the Digital Health Privacy Program (DHPP). DHPP is crucial in the telehealth industry as it establishes protocols to protect the privacy of consumer health data, ensuring trust and confidentiality in remote healthcare interactions. By safeguarding sensitive information, DHPP fosters patient confidence in utilizing telehealth services, driving widespread adoption and improving healthcare accessibility. Learn more about DHPP by following the link below.

Resources mentioned in this episode:

The COPPA Rule: Proposed Changes, the Impact, & the Magic 8-Ball

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In December 2023, the Federal Trade Commission (FTC) proposed changes to the Children’s Online Privacy Protection Act (COPPA) Rule, including some that would place more responsibility on providers and platforms to ensure digital privacy and safety for children. 

In this episode of Priv, our host Dona Fraser is joined by SIIA Vice President, Education & Children’s Policy, Sara Kloek, and Children’s Advertising Review Unit (CARU) Director, Rukiya Bonner, to discuss how we got here, what the proposed changes mean, the potential impacts of these changes for businesses and Safe Harbors, as well as some predictions on the road ahead.

The conversation delves into the proposed changes to the COPPA Rule and their ramifications on the industry. Explored within are the origins of COPPA, recent regulatory actions and reviews, the importance of data security and compliance, emerging methods for obtaining parental consent, the significance of COPPA Safe Harbors, transparency obligations, the delineation of a child, challenges related to content and access, the impact of avatars on personal data, COPPA’s application in educational settings, and key revisions in the COPPA Rule. 

Some Key Takeaways from today’s episode:

  1. (2:10) Companies and the COPPA Rule Changes: With proposed changes to the COPPA Rule looming, companies must prioritize a proactive approach towards data security and compliance. Reviewing these alterations is crucial as it directly impacts how businesses handle children’s data. By staying ahead of the curve, companies can implement necessary measures to safeguard user information and ensure adherence to regulatory standards, fostering trust among consumers and mitigating potential legal risks.
  2. (11:57) COPPA Safe Harbors and Privacy Commitment: COPPA Safe Harbors serve as invaluable tools for companies aiming to showcase their dedication to safeguarding children’s privacy. By adhering to these guidelines, businesses not only enhance their reputation but also contribute to a safer online environment for young users. Embracing COPPA Safe Harbors demonstrates a commitment to ethical data practices, ultimately fostering long-term trust and loyalty among consumers.
  3. (20:56) Complexity of Child Definition and Age Thresholds: Discussions surrounding the definition of a child and age thresholds are multifaceted and necessitate careful consideration. The evolving digital landscape and varying developmental stages of children further complicate this matter. As such, ongoing dialogues are essential to ensure that regulatory frameworks accurately reflect the needs and vulnerabilities of young users, striking a delicate balance between protection and accessibility.
  4. (28:49) Enhancing User Experience and COPPA Compliance: Transparent notice and consent processes, coupled with innovative approaches to privacy policies, play a pivotal role in enhancing both user experience and compliance with COPPA regulations. By prioritizing clear communication and user-friendly interfaces, companies can empower users to make informed decisions regarding their data while simultaneously meeting regulatory requirements. Creative strategies in this realm not only promote compliance but also foster positive user engagement and brand loyalty.
  5. (41:40) Adapting to Uncertain Timelines and COPPA Rule Changes: While the timeline for the final COPPA Rule remains uncertain, companies must remain vigilant and adaptable in the face of potential changes. Staying informed about developments in regulatory landscapes is paramount, allowing businesses to swiftly adjust their practices and policies as needed. By prioritizing flexibility and preparedness, companies can navigate regulatory shifts with confidence, ensuring continued compliance and consumer trust.

 

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Privacy For Start-Ups

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There are tens of thousands of entrepreneurs in the United States. When getting their business off the ground, often growth, not necessarily privacy, is the primary focus, especially in the technology sector where data is often central to the business. 

In this episode of Priv, our hosts are joined by the Tech Diplomacy Network’s Katharina Koerner and Santa Clara University’s Professor Linsey Krolik to discuss the questions entrepreneurs face when getting their business started, how to ensure privacy is part of any pivots or growth plans, and best practices for navigating the data wants vs the must haves. 

For more information about this episode, read the show notes here. 

The Government Purchase of Private Data

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As a consumer uses their cell phone or mobile device throughout the day, location data, preference, search, and other seemingly private data is collected by app companies and sold to third-party data brokers. Certain of those third-party data brokers may sell that data to government entities, including law enforcement. 

In this episode of Privacy Abbreviated, professor Matthew Tokson joins our hosts to discuss how this collection and sale of private data may help government agencies circumvent certain legal requirements, such as when location data can’t be acquired without a warrant, and the implications of this circumvention. 

For more information about this episode, read the show notes here. 

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Ein entscheidender Faktor für die Popularität von Online Casinos in Deutschland ist die Bequemlichkeit des Zugangs. Spieler können ihre Lieblingsspiele jederzeit und überall spielen, ohne physisch ein Casino besuchen zu müssen. Die Verfügbarkeit von mobilen Apps macht das Erlebnis noch zugänglicher und ermöglicht es den Spielern, auch unterwegs zu spielen.

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Filling Privacy Gaps with Soft Law Solutions

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Emerging technology is innovative, creative, and fun, but it moves faster than the development of the privacy regulations, laws, and formal guidelines that will eventually govern it. In the absence of a comprehensive federal privacy law, companies experimenting and innovating are looking for guidance. Soft law standards and rules of the road can fill the legally binding hard law gaps that exist for emerging tech. 

In this episode of Privacy Abbreviated, our hosts are joined by the Future of Privacy Forum’s Jameson Spivack to discuss how industry-developed standards and best practices can guide policymaking allowing hard law to adopt the lessons learned from soft law. 

For more information about this episode, read the show notes here.